Diabetes Schmiabetes

This weekend Emily did some travelin! It was a girls weekend with her three caregivers Nicole, Jamie, & Kinzi. We road tripped down to Rochester, MN for the JDRF Walk to Cure Diabetes. We got a fancy hotel, a Marriot with a third floor pool! Kudos to all of our recent hotels for having lifts to get the kid in & out of the water! We walked down the street to dinner at a place called Dooley's Pub. As we were eating a balloon man approached us and asked Emily if she would like some balloons. He made her two flower bracelets and then made Nicole, Jamie, & Kinzi stethoscopes. Very creative! The walk was on Sunday. It was forecasted to rain, but we actually lucked out and got a beautiful day for the most part. When the walk was over it started to sprinkle a little bit but then stopped right away. Our team name was Sharp Shooters and we got team shirts made. Emily had a lot of fun!

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Epilepsy & ER visits

Emily has had a bit of a rough weekend! On Friday, May 10 Emily started to have multiple staring seizures. Quite simply this means her eyes are staring off to one side for a given period of time usually ranging from 5-60 seconds. She has occasionally had these before, but only one or two in a single day. Well by noon on Friday she was already up to 8 of these episodes so we were on the phone with her doctors trying to make a plan of action. It is very difficult to get into a neurologist for an appointment and our general doc couldn't help us. We eventually made our way down to Children's Hospital Emergency Room. We sat in the ER being monitored for about 6 hours when they made the decision to admit Emily to the Epilepsy unit of Children's Hospital. To determine what was going on she had leads hooked up to her head for an EEG (electroencephalogram), a heart monitor, and a video monitor. They watched her all night long using all of this equipment. Over the course of this entire day Emily experienced 20 staring seizure episodes!! The next day she had 9. And by Monday she was back to only one, or even zero, in a day. We are not exactly sure why this happened as the doctors found no good explanations on the EEG readings.

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Bikes & Basketballs

Emily finished up therapy and returned home to normal life. She is very happy to be back at school with all of her friends! She has taken full advantage of the few days of nice weather we got. She played basketball with her big bro Nicholas, went for bike rides, and spent a lot of time outdoors.

She got her new wheelchair! We spent the day at Gillette getting it perfectly fitted to her body. The completed product is exactly what she needed!

Emily got to go see her big sister Rose and her PCA Jamie at their senior prom.